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STANDING UP to POTS is committed to supporting research for postural orthostatic tachycardia syndrome (POTS).  Standing Up to POTS was founded in 2014 and is a 501(c)(3) non-profit organization. Because we are run completely by volunteers, 92ยข of every $1 received from all sources is spent on innovative POTS research that aims to improve the quality of life for people currently living with POTSJoin us in supporting innovative new research to improve quality of life for POTS patients, donate to the Standing Up to POTS Research Fund. Standing Up to POTS runs our own active research program, and has funded $258,684 in POTS research for top POTS research teams across the globe.  All contributions to our organization are tax deductible.

Although postural orthostatic tachycardia syndrome (POTS) is not visible or typically life-threatening, it causes an enormous emotional, physical, and financial burden to POTS patients and their families.  The burden to POTS patients is made worse by the lack of understanding and awareness by most people, combined with some of the unique features of POTS, such as inability to be upright, frequent fainting episodes, adrenaline rushes, severe brain fog, pain, and the unpredictable flares of these symptoms.  The high degree of physical disability, cognitive impairment, pain, and disruption to schooling/career/life plans leaves these patients with myriad challenges to everyday living.  They often struggle with finances, relationships, daily chores, grooming, maintaining proper nutrition and weight, communicating their needs to family and friends, finding supportive social circles, finding social activities that work for them, and maintaining good mental health.

 Are you living with POTS?  Tell us YOUR STORY!

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Are you struggling to cope with your illness?  Check out our Counseling and Suicide Prevention pages.

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Standing Up to POTS was founded by Dr. Cathy Pederson in 2014 after her daughter was diagnosed with POTS.  Standing Up to POTS was created to generate a community who can support each other while pushing forward understanding of POTS.  Dr. Pederson earned her Ph.D. in Physiology and Neurobiology from Rutgers in 1996, and has dedicated all of her professional research efforts to POTS, chronic illness, and quality of life.

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Postural Orthostatic Tachycardia Syndrome Facts

  • Approximately 500,000 to 3,000,000 Americans suffer from POTS.

  • 1% of US teens likely have POTS, and it is 5x more common in women than men.

  • People of all ages can develop POTS, but that it is most common in women ages 15-50.

  • Current research indicates that POTS may be an autoimmune condition.

  • 25% of POTS patients are too sick to work or attend school. The physical effects of POTS have been compared to having congestive heart failure or chronic obstructive pulmonary disorder (COPD).