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Our Publications

Standing Up To POTS is proud to be actively publishing articles to introduce POTS to practitioners and the general public.

Standing Up to POTS is proud to be actively publishing articles about postural orthostatic tachycardia syndrome (POTS).  We are working to introduce POTS to a wide variety of practitioners as well as raising awareness about POTS in the general population.  * denotes author is a member of the SUTP Board of Directors

Research Articles

Pederson, Cathy L. and Brooke M. Wagner. 2023. “Gender Matters: Perceived Burdensomeness Increased in Males with Chronic Invisible Illness.” Advances in Science, Engineering and Technology. 11(1): 102-107.

Weinstock, L.B., Jill B. Brook, and G.J. Molderings. 2022. Efficacy and toxicity of hydroxyurea in mast cell activation syndrome patients refractory to standard medical therapy: retrospective case series. Nauyn-Schmiedeber's Archives of Pharmacology.

Pederson, Cathy L. and Brooke M. Wagner. 2022. "The depressing truth about depression scales for people with chronic invisible illness." Journal of Health Science & Education. 6(1): 1-6. DOI: 10.0000/JHSE.1000223

Pederson, Cathy L. and Brooke M. Wagner. 2021. "Predictive and protector factors in suicidal behavior among males diagnosed with postural tachycardia syndrome." Journal of Men's Health. DOI: 10.31083/jomh.2021.135

Weinstock Leonard B., Brook Jill B*, Walters Arthur S, et al. 2021. "Mast cell activation symptoms are prevalent in Long-COVID." International Journal of Infectious Diseases.

Pederson, Cathy L., Yontz Brian D., and Haley A. Cochran. 2021. "What Chronically Ill Students Need From Their Schools." Kappa Delta Pi Record, 57:75-79.

Weinstock Leonard B., Brook Jill Blettner*, Blasingame KE, Kaleem Z, Afrin Lawrence B, et al. (2021) "Tinnitus in mast cell activation syndrome: A prospective survey of 114 patients." J Otolaryngol Neurotol Res, 4(1): 92-96

Pederson, Cathy L.*, Kathleen Gorman-Ezell*, and Jeffrey B. Brookings. 2020. "Psychological distress among postural tachycardia syndrome patients in the Fennell Crisis phase." Fatigue: Biomedicine, Health & Behavior.  

Nardone, Massimo, Juan Guzman, Paula Jean Harvey, John S. Floras, and Heather Edgell. 2020. "Effect of a neck compression collar on cardiorespiratory and cerebrovascular function in postural orthostatic tachycardia syndrome (POTS)." Journal of Applied Physiology.    SUTP Funded Grant

Afrin LB, Ackerley MB, Bluestein LS, Brewer JH, Brook JB*, et al. 2020. "Diagnosis of Mast Cell Activation Syndrome: A Global "Consensus-2." Diagnosis.

Pederson, Cathy L.* 2020. "Suicide is a Concern for the Chronic Invisible Illness Community." Journal of Health Science & Education 4(1):1-2. DOI: 10.0000/JHSE.1000176  

Weinstock, Leonard B., Arthur S. Walters, Jill B. Brook*, Zahid Kaleem, Lawrence B. Afrin, Gerhard J. Molderings. 2020. "Restless Legs Syndrome is Associated with Mast Cell Activation Syndrome." Journal of Clinical Sleep Medicine.

Pederson, Cathy L.*, Kathleen Gorman-Ezell*, Greta Hochstetler Mayer and Jeffrey B. Brookings. 2019. "Development and Preliminary Validation of a Tool for Screening Suicide Risk in Chronically Ill Women." Measurement and Evaluation in Counseling and Development.  doi: 10.1080/07481756.2019.1691463  

Pederson, Cathy L.* and Stacy Ogbeide. 2019. "Diagnosing and Caring for Patients with Postural Orthostatic Tachycardia Syndrome in Primary Care." Journal of Health Science & Education. 3(4): 1-4. 

Brookings, Jeffrey B. and Cathy L. Pederson.* 2018. "INQ-15 Cutoff Scores for Suicidal Ideation Screening of Women with Chronic, Invisible Illnesses." Clinical Psychology & Psychotherapy. doi: 10.1002/cpp.2343    

Pederson, Cathy L.* 2018. "The Importance of Screening for Suicide Risk in Chronic Invisible Illness." Journal of Health Science & Education. 2(4): 1-5.   

Pederson, Cathy L.*, and Jeffrey B. Brookings. 2018. "Suicide Risk Linked with Perceived Burdensomeness in Postural Tachycardia Syndrome." Journal of Health Science & Education.  2(1): 128.   

Weinstock, Leonard B., Jill Blettner Brook*, Trisha L. Myers, and Brent Goodman. 2018. "Successful Treatment of Postural Orthostatic Tachycardia and Mast Cell Activation Syndromes Using Naltrexone, Immunoglobulin and Antibiotic Treatment." BMJ Case Reports.  doi:10.1136/bcr-2017-221405

Pederson, Cathy L.*, Kathleen Gorman-Ezell*, and Greta Hochstetler Mayer. 2018. "Assessing Depression in Those who are Chronically Ill." Counseling Today, 60(9): 38-43.  

Pederson, Cathy L.*, and Jill Blettner Brook*. 2017. "Health-Related Quality of Life and Suicide Risk in Postural Tachycardia Syndrome."  Clinical Autonomic Research. 27(2): 75-81. DOI 10.1007/s10286-017-0399-5   

Pederson, Cathy L.*, and Jill Blettner Brook*. 2017. "Sleep Disturbance Linked to Suicidal Ideation in Postural Orthostatic Tachycardia Syndrome."  Science and Nature of Sleep.  9: 109-115. 

Blitshteyn, S. and Jill Blettner Brook*. 2017. "Postural tachycardia syndrome (POTS) with anti-NMDA receptor antibodies after human papillomavirus vaccination." Immunologic Research.  65(1): 282-284. 

Pederson, Cathy L.*, Kathleen Gorman-Ezell*, and Greta Hochstetler Mayer. 2017. "Invisible Illness Increases Risk of Suicidal Ideation: The Role of Social Workers in Preventing Suicide." Health & Social Work. 42(3): 183-186.

Pederson, Cathy L.* and Greta Hochstetler Mayer. 2016. "The Tangible Effects of Invisible Illness." Counseling Today, 58(11): 56-59.

Book Chapters

Pederson, Cathy L. 2020. "Understanding Suicidal Ideation in People with Chronic Invisible Illness." In Understanding Suicidal Ideation, edited by David Lester. Nova Science Publishers.

Poster Presentations

McLaughlin A, Brook Jill*, Blitshteyn Svetlana.  Gluten-Free Diet in Postural Orthostatic Tachycardia Syndrome (POTS).   Abstracts of Scientific Papers and Posters Presented at Physiatry ’21, American Journal of Physical Medicine & Rehabilitation: April 2021 - Volume 100 - Issue 4 - p a1-a204 doi: 10.1097/PHM.0000000000001696

Weinstock, Leonard, Jill Brook*, Zahid Kaleem, Lawrence Afrin,  and Gerhard J. Molderings. 2019. "Small Intestinal Bacterial Overgrowth in Mast Cell Activation Syndrome."  The American Journal of Gastroenterology. 114(Supplement):S670. DOI:10.14309/01.ajg.0000594304.61014.c5

Publications Featuring Standing Up to POTS

Works to Improve Quality of Life - Standing Up to POTS,  Go Solo Entrepreneurial Online Magazine. Posted October 31, 2022.

Mom Starts Nonprofit to Raise Awareness, Fund Trials. TrialSite News. Posted January 14, 2022.