Privacy Policy

Welcome to StandingUptoPOTS.org! This website, including its web pages and subdomains (the “Website”), is owned and operated by Standing Up to POTS, Inc. (“SUTP”, “we”, or “us”), a not-for-profit organization. This Privacy Policy describes what information we collect from visitors to our Website (“you”) and how we use and share that information. This Privacy Policy also applies to information we collect via our donation platform, events, podcast, and other programs and services (collectively, our “Services”). This Privacy Policy does not apply to any sites that may now or in the future be linked to or from this Website that are not owned or controlled by us.

Please read this Privacy Policy carefully. By providing us with any Personal information (as defined below) or using our Website or Services, you consent to the collection, storage, use, and sharing of your Personal Information as described in this Privacy Policy.

What this Privacy Policy covers:

- How we define personal information

- What information we collect from you

- How we use your information

- How we share your information

- How you can control your personal information

- How we store your personal information

Definition of Personal Information

When you use our Website or Services, we may collect personal information about you (“Personal Information”). As used in this Privacy Policy, “Personal Information” means any information that could be used to identify a specific individual, such as name, address, email address, or phone number. Personal Information may include your medical history, if you voluntarily disclose that information to us.

What Information We Collect From You

In order to make certain features of the Website and Services available to you, we may ask you for Personal Information, and we may collect certain non-personal information about you and your computer, mobile phone, or other device used to access the Website or Services (“Usage Information”).

Personal Information

When you use the Website or Services, you may voluntarily provide Personal Information to us. The decision to provide us with Personal Information is entirely up to you - you may use our Website and its features without providing any Personal Information to us. We may receive Personal Information from you in the following situations:

Usage Information

We also collect certain non-personal information about your device and your interaction with our Website which cannot be used to personally identify you. The following anonymous information is collected from you or your device when using the Website:

How We Use Your Information

Generally, we use Personal Information to provide our Services or fulfill your request. We may use your Personal Information and Usage Information for the following purposes:

How We Share your Information

In order to make the Website and Services available to you and operate our organization, we will need to share your Personal Information and Usage Information with third parties. However, when we share your Personal Information, we only disclose the specific categories of Personal information required to provide the service for which the Personal Information was disclosed. SUTP does not sell, rent, or lease your Personal Information to any party for any purpose. We share your Personal Information in the following circumstances:

How You Can Control Your Personal Information

It is entirely your choice to provide us with any Personal Information. You can use our Website even if you choose not to provide us with your Personal Information. You may also request that we delete your Personal Information by contacting us using our contact details at the end of this Policy. Where possible, we will delete your Personal Information. However, we may need to retain some of your Personal Information for recordkeeping or other legitimate purposes.

You may opt out of emails from us by clicking the “unsubscribe” link in the email or contacting us.

How We Store Your Personal Information

We use industry standard technical, physical, and administrative safeguards to protect Personal Information. However, you should know that, due to the open communication nature of the Internet, no transmission is 100% secure. We cannot guarantee that communications to and from the Website will be free from unauthorized access by third parties, nor can we be responsible for Personal Information stolen from our servers by information harvesting software which may have the ability to scrape data. You send us Personal Information at your own risk.

Third Party Providers/Links

In order to provide you with information about POTS, our Website may link to third-party websites, such as news or medical journal articles, tips, and other resources. We may also link to third-parties that provide services to us, such as our donation payment processor, event registration provider, or other service providers.

Those third-party websites may collect Personal Information about you. SUTP does not control or endorse those websites or the information, products, or services found on those websites. We are not responsible for their collection or use of your Personal Information, or the contents, advertising, privacy policies or other material available on those third-party sites. We encourage you to read the privacy policies of any third-party websites you visit before you provide them with any Personal Information. Questions about the information collection practices of a third-party website should be directed to the third-party website administrator.

Social Features

Our Website or Services may include a feature that allows you to view or share content on social networks by initiating contact with such social network or allowing you to interact with us on the social network. By referencing or “tagging” SUTP or using hashtags that alert or identify SUTP in any social media posts, you consent to the publication of such material on our Website or on the SUTP social media accounts. Any information we collect from you via your use of social features is subject to this Privacy Policy, unless provided otherwise in writing. The social network site you choose to visit may also collect information from you. We are not responsible for their use of your Personal or non-personal information. You should review the privacy policies of any social networks you visit for more information on their use of your Personal Information.

How the Website Responds to “Do Not Track” Signals

Certain web browsers feature a “Do Not Track” tool which sends a signal to the website not to track the user’s activity. Because there is not a universal understanding of how to respond to “Do Not Track” signals, our Website does not recognize or respond to such “Do Not Track” requests from Internet browsers or mobile devices. However, we do not display or enable targeted advertising on our Website.

Changes to this Privacy Policy

We reserve the right to modify this Privacy Policy at any time. When we update the Privacy Policy, we will notify you by posting the new Policy here and updating the “Effective Date” at the top of this page. We encourage you to review this Policy regularly for updates. By continuing to use the Website or Service after we have posted the new Privacy Policy, you accept the changes.

Questions About Our Privacy and Information Security Practices?

If you have any questions about our privacy practices or procedures, please contact us at:

Standing Up to POTS
Attn: Privacy
P.O. Box 72
North Hampton, OH 45349

[email protected]