Finding an Autonomic Physician

Finding a knowledgeable physician for POTS can be challenging. Typically, you're looking for an autonomic neurologist or autonomic cardiologist-but often, it's more about the provider's specific interest and experience in treating autonomic disorders than their exact specialty.

Here are a couple of suggestions that might help you connect with a good POTS doctor in your area:

1. Physician Directories: These lists provide ideas of healthcare providers familiar with POTS and other autonomic disorders. It's a great starting point to see if there's someone near you:
   • Physician Listing - DINET
   • Physician Listing - Dysautonomia International
   • Dysautonomia Support Network
   • Dysautonomia Youth Network of America, Inc.
   • POTS UK
   • Heart Rhythm Alliance
2. Online Support Groups: If you haven't already, consider joining a POTS-focused Facebook group. Standing Up to POTS has a helpful Facebook support community, and there are many others where members often share doctor recommendations and personal experiences. These groups can be a great source of support and connection.
3. ChatGPT and other AI tools can be helpful for finding a good POTS practitioner because it can scan patient ratings/reviews, Reddit threads, publications, presentations, and interviews. These AI sites can also determine who is in your insurance network, geographical area and is accepting new patients. You can also have it double check the medical license and any complaints, etc. Sample questions might include:
   • What licensed healthcare practitioners work with POTS patients within X miles of my location (enter your city and state)?
   • Of these practitioners, which accept my insurance (list your insurance company) and are currently accepting new patients?
   • Rank these practitioners from best to worst based on patient ratings, prominence in the POTS community, and complaints filed against them.

How to Find a Good Doctor gives excellent general advice for what to look for when you are choosing a new physician.

Once you find a good physician, be sure that you prepare for the appointment. Making a good impression is important, and bringing along as much information as possible will help you to hit the ground running. This is especially important when you have an invisible illness. Check out these preparation tips.