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Our Initiatives

Standing Up To POTS is working hard to improve the quality of life for POTS patients!

The mission of Standing Up to POTS is to improve the quality of life for people living with postural orthostatic tachycardia syndrome (POTS) through research, advocacy, and support.

Funding Innovative POTS Research

Our Research Fund has awarded $529,782 for POTS research

Standing Up to POTS is dedicated to funding research that will help to improve the quality of life for people with postural orthostatic tachycardia syndrome (POTS).  Our Research Fund supports and encourages research that can lead to improved diagnosis and treatment for POTS patients. For more information, click here.

Publishing Our Own Research and Awareness Articles

Standing Up to POTS is actively writing and submitting manuscripts to broaden the awareness about postural orthostatic tachycardia syndrome (POTS) in both the medical community and general public.  Please click here to see a full listing of our publications.

Advocacy to advance the understanding of POTS

Standing Up to POTS is dedicated to providing accurate, up-to-date information about POTS to families living with this chronic illness as well as the medical community.

The POTScast: Led by members of our Board of Directors.

YouTube videos: These original short videos highlight areas of concern for the POTS community with simple steps toward improvement.

Social media: We publish new and original content daily. Find us on your favorite social media outlet @standinguptopots! Links are at the bottom of the page.

Support for families living with POTS

Standing Up to POTS Support Group: This group is for anyone with POTS or family members experiencing POTS vicariously. This group provides support to members on their bad days, and cheers for the small accomplishments that mark progress.

Standing Up to POTS Teen Group: This group is only for teens and college students who are battling POTS. Adolescents with POTS have unique issues related to school, peer pressure, and dealing with family that adults don’t have.

Standing Up to POTS in the News

Katie Couric Media. This Chronic Condition has Surged in Women who have Recovered from COVID.  Released March 16, 2023.

Refinery29. My Rare Chronic Illness is Now Viral on TikTok.  Released March 16, 2023.

CTV News. POTS Syndrome. Released August 22, 2022.

WSIU Public Radio. Long COVID patients join a chronic illness community seeking answers. Released August 4, 2022.

Calm, Cool, and Connected Podcast. Mental Health in Postural Orthostatic Tachycardia Syndrome. Released April 27, 2022.

News 5 – WEWS Cleveland Ohio. Featured on a local news story about Long COVID and POTS. ‘I Feel Useless’: Disease that causes young woman to pass out constantly may be on the rise amid COVID, Released March 16, 2022.

Thrivent Magazine, December 2015. "My Life with POTS

Our Annual Standing Up to POTS 5K/2K

Standing Up to POTS sponsors an annual 5K/2K on Wittenberg University's beautiful campus in Springfield, Ohio. This annual event is a great opportunity to meet other families living with POTS, exercise, and raise money to fund POTS research and advocacy efforts.