The mission of Standing Up to POTS is to improve the quality of life for people living with postural orthostatic tachycardia syndrome (POTS) through research, advocacy, and support.
Funding Innovative POTS Research
Our Research Fund has awarded $258,684 for POTS research
Standing Up to POTS is dedicated to funding research that will help to improve the quality of life for people with postural orthostatic tachycardia syndrome (POTS). Our Research Fund supports and encourages research that can lead to improved diagnosis and treatment for POTS patients. For more information, click here.
Publishing Our Own Research and Awareness Articles
Standing Up to POTS is actively writing and submitting manuscripts to broaden the awareness about postural orthostatic tachycardia syndrome (POTS) in both the medical community and general public. Please click here to see a full listing of our publications.
Advocacy to advance the understanding of POTS
Standing Up to POTS is dedicated to providing accurate, up-to-date information about POTS to families living with this chronic illness as well as the medical community.
The POTScast: Led by members of our Board of Directors,
YouTube videos: These original short videos highlight areas of concern for the POTS community with simple steps toward improvement.
Social media: We publish new and original content 4-5 days per week. Find us on your favorite social media outlet @standinguptopots! Links are at the bottom of the page.
Support for families living with POTS
Standing Up to POTS Support Group: This group is for anyone with POTS or family members experiencing POTS vicariously. This group provides support to members on their bad days, and cheers for the small accomplishments that mark progress.
Standing Up to POTS Teen Group: This group is only for teens and college students who are battling POTS. Adolescents with POTS have unique issues related to school, peer pressure, and dealing with family that adults don’t have.
Our Annual Standing Up to POTS 5K/2K
Standing Up to POTS sponsors a 5K/2K on Wittenberg University's beautiful campus in Springfield, Ohio. This annual event is a great opportunity to meet other families living with POTS, exercise, and raise awareness about this disorder.
- 7th Annual Standing Up to POTS Virtual 5K/2K, October 17, 2020
- 6th Annual Standing Up to POTS 5K/2K, October 5, 2019
- 5th Annual Standing Up to POTS 5K/2K, October 20, 2018
- 4th Annual Standing Up to POTS 5K/2K, October 7, 2017
- 3rd Annual Standing Up to POTS 5K/2K, September 24, 2016
- 2nd Annual Standing Up to POTS 5K/2K, April 9, 2016
- Standing Up to POTS 5K, May 2, 2015
Raising Awareness in Thrivent Magazine, a Fortune 500 Company
My Life with POTS was spotlighted in the Meet the Member Section of Thrivent Magazine in December, 2015. The book chronicles Lily's two year struggle with postural orthostatic tachycardia syndrome from her own perspective. Delivered to 1.2 million homes across the United States, we are thrilled to have POTS spotlighted in this way. To read or print a .pdf version of the article, please click here.