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Living through POTS together

Peyton, age 19, Wyoming

January of 2018 is when all of my symptoms began. I can tell you exactly where I was, exactly what I was doing and exactly what I was feeling when it started. It was something I had never felt before. I couldn’t walk right, my vision was blurred and I was so lightheaded I thought I would faint.

For 6 months, I struggled to find a diagnosis. Because POTS is such a new disorder, none of the doctors that I went to could figure out what it was that was wrong with me. In those 6 months, I became a different person. I didn’t want to leave my house. I went from an outgoing, social person, to a complete introvert in such a short period of time. After many doctors appointments, I finally found an answer.

After just one appointment with a new doctor, I was diagnosed with POTS. It has certainly been a rollercoaster. But since I have received a diagnosis, things have gotten so much better. I know how to care for myself properly and I’m back to being my happy-go-lucky self. Some days are harder than others, but I am just happy to have the life that I have, even if it means I live with POTS. And now, I can help others with their POTS journey. Recently, one of my best friends was also diagnosed with POTS. She tells me everyday that she doesn’t know what she would do without me. We have helped each other so much and it’s an amazing feeling to know that I am not alone. I want to make a change and help others to realize that they are not alone either.

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