Profiles of People Living with POTS



13 Years Undiagnosed

Andrew, age 30, Liverpool, England

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15 Years Into POTS

Kristen, age 49, New York

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A 16 year journey to diagnosis

Jaclyn, age 32, Illinois

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A Decade of Living with POTS

Jess, age 25, Ohio

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A Desperate Listener in Remission, Thank You to The POTScast

Christina, age 46, California

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A diagnosis but no treatment: A journey to advocating for myself

Christina, age 27, California

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A heartbeat of a thousand stories

Imke, age 20, Belgium

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A Long Struggle to Find Answers

Jennifer, age 67, Virginia

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A POTS Domino Effect: From POTS to Gastroparesis, MCAS, & May-Thurner Syndrome

Georgia, age 23, Oklahoma

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A Teenage Perspective on POTS

Julia, age 15, Florida

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A Twelve Year Battle

Jamie, age 28, Kentucky

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Advocating for Myself as I do for my Patients

Heather, age 33, Wisconsin

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Advocation and Acceptance

Madison, age 18, North Dakota

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Aerial dancing and POTS

Zoe, age 17, Utah

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Change of Career with Diagnosis?

Brandon, age 25, Washington

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Chrysalis

Lucy, age 17, Iowa

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Climbing Toward My Future One Day at a Time

Neve, age 17, Australia

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Competitive Swimmer Fighting POTS

Tabby, age 15, Arizona

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COVID Exacerbated my POTS Symptoms

Paula, age 56, Oklahoma

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Crowned By Courage: The Strength Behind the Tiara and the Finish Line

Jessy, age 18, Massachusetts

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Developing POTS after pregnancy and COVID

Victoria, age 30, Nova Scotia, Canada

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Empowered by the Diagnosis

Lizzy, age 14, California

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Fighting for a Diagnosis: It's NOT Anxiety

Liliana, age 21, Texas

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Fighting for my Dream

Zoe, Wiltshire, United Kingdom

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Fighting through

Hannah, age 22

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Finding my Balance: Living and Thriving with POTS

Kelsey, age 15, Pennsylvania

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Finding My Power

Amanda, age 33, Maryland

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Finding the Light within the Dark

Lindsey, age 22, California

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Finding Your Inner Advocate

Kelsey, age 27, North Dakota

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Four Years of Unknown Illness

Gabby, age 21, Massachusetts

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Friendship and Chronic Illness

Nancy, age 20, United Kingdom

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From Corrections Officer to the Ditch: My Terrifying Journey with POTS

Lea, age 23, Arizona

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From the Depths

Kristen, age 26, Pennsylvania

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Grueling Journey to Diagnosis

Laura, age 19

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Holly’s Heart

Holly, age 21, Tennessee

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How POTS Changed my Career Path

Tiffany, age 31, California

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How POTS changed my life

Danielle, age 29, Arizona

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I Thought I Was Just Tired. Then Everything Changed.

Emily, age 36, Kansas

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I Understand Now

Annie, age 26, England

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I Will Never Give Up on Myself: Getting POTS after COVID-19

Jennifer, age 29, Illinois

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Invisible No More: My Journey to a POTS Diagnosis

Taylor, age 21, Florida

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IV Fluids Are Amazing

Patrick, age 59, Indiana

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Journey to my POTS Diagnosis

Morgan, age 16, Illinois

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Just a teen with POTS

Cameron, age 17, Virginia

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Know your limits and take life at your own pace

Mady, age 17, Kansas

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Learning to Care for Myself

Natalie, age 15, Virginia

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Learning to Listen to my Body

Mikayla, age 23, Pennsylvania

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Learning to Walk Again

Brooklyn, age 19, Texas

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Life with POTS

Kaelyn, age 19, New York

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Living Life POTSitive

Briana, age 26, New Jersey

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Living Life with POTS

Darcy Marie, age 32

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Living through POTS together

Peyton, age 19, Wyoming

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Living with POTS

Lillian, age 25, Delaware

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Living with POTS from 10 Years Old

Eliana, age 19, Virginia

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Living With the Disorder No One Understands

Hannah, age 19, North Carolina

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Mixing Oil and Water - POTS and the National Guard

Kris, age 22, Oklahoma

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My Disability Doesn't Define Me

Hannah, age 16, Connecticut

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My Fight with POTS

Eloise, age 14, United Kingdom

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My Journey from Lyme to POTS

Kaleigh, age 17, Connecticut

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My Journey to a POTS and Possible EDS Diagnosis at 35 Years Old

Erin, age 35, South Carolina

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My Life is Standing Still, Ironically...

Anne, age 56, France

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My Life With POTS

Abigail, age 17, North Carolina

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My Long and Sordid Tale

Rawal, age 31, Germany

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My POTS Progression over a Decade

Katie, age 28, New York

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My POTS Story

Kaitlin, age 22, Indiana

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My POTS was Worsened by COVID

Hannah, age 28, Massachusetts

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My Son’s Amazing Recovery from POTS

Bobby, age 13, Florida

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My Story with POTS

Mary, age 16, Tennessee

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Navigating High School with POTS

Meredith, age 16, California

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Navigating POTS

Jess, age 26, Colorado

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Navigating the Maze

Lizzie, age 17, Tennessee

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One Test Could have Changed Everything

Reanna, age 21, Nevada

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POTS after COVID infection

Sunny, age 41, New Mexico

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POTS after Pregnancy

Destiny, age 22, Nevada

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POTS and MALS discovery post COVID-19 infection

Brooke, age 21, Australia

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POTS and My Morning Routine

Lindsay, age 35, California

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POTS for a Lifetime

Tasha, age 22, Florida

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POTS from a Man’s Perspective

Denny, age 44, Pennsylvania

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POTS Head

Jaimee, age 16, Nevada

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POTS is Not Just in Teenagers

Kathleen, age 71, Rhode Island

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POTS: It Changed My Life and Forced Me to Adapt

Derek, age 26, Pennsylvania

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POTSie for Life

Rachael, age 37, Pennsylvania

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Professional Dancer Becomes Professional Patient

Rebekah, age 51, Missouri

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Reclaiming My Life: Battling POTS and Finding Strength Through Advocacy

Gracie, Pennsylvania

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So many POTS but no Spoons

Jodi, age 41, Pennsylvania

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Spreading the POTSitivity: Embracing Life's Unexpected Turns

Camille, age 24, California

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Standing Against the Fall

Stephanie, age 31, Kentucky

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Staying Positive Despite POTS

Terria, age 42, Tennessee

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Still Relevant

Nellie, age 49, Illinois

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Struggling through the Teen Years with POTS

Jessi, age 20, California

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The Daily Struggle with POTS for a Pre-Teen

Lily, age 12, Ohio

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The Invisible Battle

Lauren, age 17, Georgia

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The Long Fight

Teena, age 42, California

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The Silver Lining: Finding Friendship in Support Groups

Jolijn, age 42, The Netherlands

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The Story Of A Girl Who Wouldn’t Take No For An Answer

Caitlan, age 21

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The Ups and Downs of POTS

Nadia, age 14, Ohio

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Turning Struggle into Calling: My POTS Journey

Maya, age 21, Ohio

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Young People Can Have More Wrong Than "Anxiety"

Brittany, age 24, Califonia

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